Guide hub · 5 guides · about 55 min of reading
Children, congenital limb difference and families
For parents of a limb-different child, and for the partners, friends and relatives of someone after limb loss. Congenital limb difference is not the same as amputation, and the first guide explains how the options differ.
The supporter guides are also for you: what helps, what backfires, and where to find people who have been there.
Start here · 13 min readCongenital limb difference: what it is, how it differs from amputation, and what the options actually look likeFor people born with a limb difference, their families, and anyone who assumed the guides written for amputees would cover them too. They often don't.Read the guide Then keep going
- Pediatric prosthetics: what parents need to know before the first fitting and afterChildren outgrow components, need a different kind of clinical expertise than adults, and navigate funding systems that were mostly designed for someone else. A practical orientation for families in the first year and beyond.11 min read
- Supporting someone after limb loss: what helps, what tends to backfire, and what you need tooA practical guide for family members, partners, and close supporters of people after amputation: what the adjustment period looks like from the outside, what kinds of support actually help, and how to recognize when you also need resources.10 min read
- Finding peer support without joining a motivational cultA low-pressure way to find people who understand limb loss, figure out what kind of support you actually want, and leave if a space is not for you.9 min read
- Adaptive recreation and sport: a practical starting guideWhere to find programs, what to ask when you call, how equipment loans and grants work, and what each major sport category actually requires to start, without the inspirational detour.12 min read
Other subjects
- The first year after amputation
- Insurance, Medicare and paying for a prosthesis
- Socket fit, skin and residual limb care
- Prosthetic types, control systems and surgical options
- Pain, whole-body health and mental health after limb loss
- Work, disability benefits and vocational rehab
- Travel, driving, sport and getting out
- Search every guide
General information, not personal medical, legal, benefits or insurance advice. Your clinical team, insurer or advocate can apply it to your situation.